Respon Emosional Orang Tua Dalam Merawat Anak Dengan Kanker Dalam Kondisi Perawatan Palliatif
Respon Emosional Orang Tua Dalam Merawat Anak Dengan Kanker Dalam Kondisi Perawatan Palliatif
DOI:
https://doi.org/10.25077/njk.v14i2.13Keywords:
cancer, parents, emotional, palliative careAbstract
Cancer is one of the main causes of morbidity and mortality in the world. In caring for children with
cancer, parents experienced many changes from this disease where parents feel giving up, feel
emotional, and lack of communication between parents and the palliative team can influence the plan
for palliative care in children. This study aims to explore the parents’ emotional response in caring
for children with cancer under palliative care condition. The study was conducted at Jakarta, Bogor,
and Bekasi. The research applied descriptive qualitative phenomenology design. Parents caring for
children with cancer under palliative care were in-depth interviewed with open-ended questions. Data
were then analyzed using the Colaizzi method. This study produced a theme. Anger, effort to distract
their anger, exspression the anger, powerlessness. This study shows that during palliative care,
parents experience a variety of emotional responses that they cannot control. Therefore, nurses are
very important to provide an assessment and facilitate the fulfillment of needs that involve family
members and religious experts to control the emotional response caused by the mother.
References
American Society for Pain Management Nursing, Emergency Nurses Association, American College of Emergency Physicians, et al. (2009). Optimizing the treatment of pain in patients with acute presentations. Retrieved from https://www.aspmn.org/Organization/documents/OptimizingPositionPaper.pdf
Bougea, A., Darviri, C., & Alexopoulos, E. C. (2011). A systematic review of randomized controlled interventions for parents' distress in pediatric leukemia. ISRN Oncology. Retrieved from https://search.proquest.com/docview/922823661?accountid=38628
Deandrea, M., Montanari, L., Moja, G., & Apolone. (2008). Prevalence of undertreatment in cancer pain: A review of published literature. Annals of Oncology, 19(12), 1985-1991. https://doi.org/10.1093/annonc/mdn419
Holmes, L., Jr, Vandenberg, J., McClarin, L., & Dabney, K. (2016). Epidemiologic, racial healthographic mapping of Delaware pediatric cancer: 2004-2014. International Journal of Environmental Research and Public Health, 13(1), 1-14. https://doi.org/10.3390/ijerph13010049
Inhestern, L., Beierlein, V., Bultmann, J. C., Moller, B., Romer, G., Koch, U., & Bergelt, C. (2017). Anxiety and depression in working-age cancer survivors: A register-based study. BMC Cancer, 17. https://doi.org/10.1186/s12885-017-3347-9
Kars, M. C., Grypdonck, M. H. F., de Korte-Verhoef, M. C., Kamps, W. A., Meijer-van den Bergh, E. M. (2011). Parental experience at the end-of-life in children with cancer: 'Preservation' and 'letting go' in relation to loss. Supportive Care in Cancer, 19(1), 27-35. https://doi.org/10.1007/s00520-009-0785-1
Kiana, B., Fatemeh, A., & Mostafa, K. (2016). Effect of mother's voice on postoperative pain in pediatric tonsillectomy surgery. Journal of Pediatric Nursing, 3(2), 51-57. Publisher · View at Google Scholar
Kissil, K., Niño, A., Ingram, M., & Davey, M. (2014). "I knew from day one that I'm either gonna fight this thing or be defeated": African American parents' experiences of coping with breast cancer. Journal of Family Nursing, 20(1), 98-119. https://doi.org/10.1177/1074840713504035
McPherson, C., Hadjistavropoulos, T., Lobchuk, M. M., & Kilgour, K. N. (2013). Cancer-related pain in older adults receiving palliative care: Patient and family caregiver perspectives on the experience of pain. Pain Research & Management, 18(6), 293-300. Retrieved from https://search.proquest.com/docview/1497176366?accountid=25704
Morrison, R. S., & Meier, D. E. (2004). Palliative care. The New England Journal of Medicine, 350(25), 2582-2590. Retrieved from https://search.proquest.com/docview/223942911?accountid=25704
Palermo, T. M., & Karlson, C. W. (2015). Developmental perspective. Family, 69(2), 142-152. https://doi.org/10.1037/a0035216
Rasjidi, I. (2010). Perawatan Paliatif Suportif dan Bebas Nyeri pada Kanker. Jakarta: Sagung Seto.
Thomsen, T. G., Rydahl-Hansen, S., & Wagner, L. (2010). A review of potential factors relevant to coping in patients with advanced cancer. Journal of Clinical Nursing, 19(21-22), 3410-3426. https://doi.org/10.1111/j.1365-2702.2009.03154.x
van der Spek, N., Vos, J., van Uden-Kraan, C. F., Breitbart, W., Tishelman, C., Cuijpers, P., & Verdonck-de Leeuw, I. M. (2013). Meaning-making in cancer survivors: A focus group study. PLoS ONE, 8(9). https://doi.org/10.1371/journal.pone.0076089
World Health Organization (WHO). (2002). National Cancer Control Programmes: Policies and Managerial Guidelines (2nd ed.). Geneva: World Health Organization.
World Health Organization (WHO). (2015). World health statistics 2013. Retrieved from https://www.who.int/gho/publications/world_health_statistics/EN_WHS2013_Full.pdf
Yifru, S., & Muluye, D. (2015). Childhood cancer in Gondar University Hospital, Northwest Ethiopia. BMC Research Notes, 8. Retrieved from https://search.proquest.com/docview/1780114845?accountid=38628
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2018 Rina Mariyana, Allenidekania, Nani Nurhaeni

This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.







